Do you have HAE?
Well then… you must
know all about B1 &
B2… as well as
medicines ending in
“-pam”, like clonezepam.
These you can take that
affect the CNS. Do not
worry… clonezepam was
not made in the clone
war. Boba banned eating
So… you are aware of cadherin-17… the
material producer of capillaries in the gut?
Yes, those that work to
pull out fluid ‘au natural’
from an HAE attack. Totally
useless! The fluid just goes back in the blood. Who
is the plumber here?
My interstitial tissues are
every damn day. What am
I?- Posedian? I wish! I’m
just Prometheus, the
You have not heard my HAE lore of woe & mayhem? Ahem.(Not “amen”- I was not bowing. Falling asleep maybe. Geez.) Okay. Maybe I do not get it either. But I am a functionally autistic, artistic immunoglobin g deficient HAE patient. My dad taught me to think. I have utilized “better-than-coping” skills.
But if I do not have a degree, I cannot help??!- wrong. I need any help. Oh wait-
Really easy, try this next time you go to a hospital: say,
“I have a congenital c-1 deficiency and I swell for no reason.”
( keep from saying hereditary
angioedema or h.a.e
I did this ONE time and the MD on duty went to work.
(That is what we want. To feel better.)
A whole new vernacular directs doctors to what they already know.
That “cadherin” mumbo jumbo I mentioned is just another super fancy way of saying you will recirculate your plasma back UP to the tear sites that can only be seen by the endothelial cells.
An HAE patient should learn to the best of their ability DOCTORAL LEVEL KNOWLEDGE and deliver it convincingly… or they will get an F. Sounds strict? Hell yes. The standard is your survival. Or your childrens’.
I saw on You Tube a video of a 14 year old in a laryengyal attack. I attempted to communicate TO THEM ON THEIR BLOG critical Viropharma info for c-1 hook up for life. No answer after 2 months. They say no man js an island. Bull. I know lots of nice people who help, but breathing or not breathing is eveyone’s personal responsibility. With the internet, I believe no one. I also DISBELIEVE no one.
Already this week someone on the internet familiar from a Mediterranean HAE group friends me. She says, “I don’t want to talk religion but usama is great Allah bless him.” I said, “You don’t talk to an American that way” and I called that in to a CIA line. I say screw that so my trigger does not start.
Best use of imagination
Imagine Darth Vader and Luke fighting. Luke is thrown into a window in Empire Strikes Back. Its like the eroding of an endothelial wall (vessel permeation unto edema).
So here are some Bradykinin screwing around. Who cares who the father is. That is what Maury Povich is for.
Man. That looks like the inside of a vessel to me. Its a long way back to the top. We gotta rock and roll every day!
Whoops! There goes Luke. Now that’s what an erythrocyte (blood cell) ought to do. But imagine these little Bradykinins trying to use the force and sabre to destroy your vessels’s mojo. Not enough Jedi (C-1) to stop them.
C-1-ESTERASE basicly is there-to-erase the will of the Bradykinin who alone are the dark knights of woe. Speaking of nights of woe, I ride the edge of acetamenophin use. How the heck are YOU all?
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